We are home now. Brad and I left the hospital at the end of the 4-5:30 visit, John in tow for the evening. I'm sure there will be a game of settlers or two before retiring to bed for the evening.
Before we left most of everything stayed the same. However, there was one change with Mom. While giving her a bath, Chasity noticed Mom began to wheeze just a bit. Staying on top of things, she called respiratory. They checked Mom out and decided to take her off the CPAP for the evening (they usually do anyhow, they just did it sooner tonight) The fluid that has been pumped into Mom is starting to get into her lungs. Dr. Chase was aware of this previously in the day thus the decision to start meds to release fluids tomorrow...as long as TCD levels were still down. Well, since the lungs were being affected more during this evening, Dr. Chase decided to begin dumping fluids before we got the morning TCD numbers. Please pray that Mom's numbers are down again tomorrow, and that they do not have to pump more fluid into her tomorrow morning to make up for what they got rid of tonight.
To recap. If tomorrow we have low TCD numbers then Mom gets to get rid of a lot of the fluid she is retaining. THEN..we can look at being on the presedex to feel good and be awake...Awake will influence being taken off the respirator and avoiding a tracheotomy (surgical procedures on the neck to open a direct airway through an incision in the trachea (the windpipe). Which can stay for a long period of time.
Most of everything is the same as earlier today except we did not anticipate having to start "dumping" the extra fluid in Mom's body just yet. Pray that her TCD numbers are down so that we did not backslide on her treatment with tonight's medicine. Also, please pray for Chuck. He began working again from 7-11ish (before the morning rounds and visiting hours) and stays through the evening visiting hours. It is tiring mentally, physically, and spritually being at Mom's side let alone resuming his work responsibility. Family has left and returned home which leaves Chuck and myself for everyday visits and Mommom and John as often as they can get to Forsyth. Being exhausted can lead to sickness and that just isn't desirable. Continue to Pray also for the other families there. We have met and speak with several families that are going through the same things (aneurysms, strokes, and uncertain futures)We are not alone and the reality of this weighs heavily on my heart everyday.
As always, will post more at tomorrow's visit